Research & Publications
…Fernandes AR, Abreu D, Ware JJ, Neacy E, Sampaio C. Incidence of completed suicide and suicide attempts in a global prospective study of Huntington’s disease. BJPsych Open. 2021 Aug 31;7(5):e158…. […]
…Fernandes AR, Abreu D, Ware JJ, Neacy E, Sampaio C. Incidence of completed suicide and suicide attempts in a global prospective study of Huntington’s disease. BJPsych Open. 2021 Aug 31;7(5):e158…. […]
…the improvement of internal and external validity of research, facilitating communication and contributing to the development of harmonised policies. A need in the HD scientific community was identified for a… […]
…comments, questions or queries. Individual Grants Are you looking for opportunities to develop your expertise and career in HD? The following are examples of potential opportunities. Show Career Grants Grant… […]
…management plans. The systematic review published in 2017 summarises the research evidence available in the seven treatment classifications. The 2020 clinical practice guideline used information from the systematic review and… […]
…na péči o HCH. Mnoho z těchto center se účastní klinických studií zaměřených na HCH. Dle místně doporučených postupů je možné je kontaktovat ohledně genetického testování, klinické péče a léčby…. […]
…at risk throughout treatment and care from early to advanced disease stages. Assessing research on facilitators and barriers in organising best practice networks. Investigating care delivery and ways for improvement… […]
…Neurologists’ current practice and perspectives on communicating the diagnosis of a motor neurodegenerative condition: a UK survey. BMC Neurology, 21, 1-9. Eccles, F.J.R., Craufurd,D., Smith,, A., … Simpson,J. (2021). Experiences… […]
…dat, infrastruktury a podpory, možností financování, vzdělávání a odborné přípravy. Dvě rozsáhlé mezinárodní observační studie, Enroll-HD a Registry, jsou prováděny na některých EHDN centrech v souladu s postupy správné klinické… […]
…: PDF download Photos: View gallery Posters: Coming soon Abstracts published in a supplement edition of the Journal of Neurology Neurosurgery & Psychiatry: JNNP Meeting webpage: open Meeting Recordings: DAY… […]
…predictive testing CAG-repeat size and transmission to the next generation Cultural diversity in genetic counselling practice Projects Previous Projects Predictive Test Recommendations Review Successful seed fund application for Genetic Counselling… […]