Research & Publications
…Fernandes AR, Abreu D, Ware JJ, Neacy E, Sampaio C. Incidence of completed suicide and suicide attempts in a global prospective study of Huntington’s disease. BJPsych Open. 2021 Aug 31;7(5):e158…. […]
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EHDN2021 Remote Meeting Report
…the improvement of internal and external validity of research, facilitating communication and contributing to the development of harmonised policies. A need in the HD scientific community was identified for a… […]
Grant Management & Collaborations
…comments, questions or queries. Individual Grants Are you looking for opportunities to develop your expertise and career in HD? The following are examples of potential opportunities. Show Career Grants Grant… […]
Physiotherapy WG
…management plans. The systematic review published in 2017 summarises the research evidence available in the seven treatment classifications. The 2020 clinical practice guideline used information from the systematic review and… […]
HD Patients and Families
…an klinischen Studien zur HK teil. Entsprechend lokalen Überweisungssverfahren können sie für die medizinische Beratung zur genetischen Testung und klinischen Versorgung und Behandlung kontaktiert werden. Das EHDN arbeitet eng mit… […]
Multidisciplinary Treatment and Care WG
…at risk throughout treatment and care from early to advanced disease stages. Assessing research on facilitators and barriers in organising best practice networks. Investigating care delivery and ways for improvement… […]
Psychological Interventions and Approaches WG
…Neurologists’ current practice and perspectives on communicating the diagnosis of a motor neurodegenerative condition: a UK survey. BMC Neurology, 21, 1-9. Eccles, F.J.R., Craufurd,D., Smith,, A., … Simpson,J. (2021). Experiences… […]
About EHDN
…über einige unserer Arbeitsgruppen wie die Arbeitsgruppe „Quality of Life“ (Lebensqualität), die Arbeitsgruppe „Standards of Care“ (Pflegestandard) und die Arbeitsgruppe „Physiotherapy“ verfolgt. Die bisher entwickelten Leitlinien finden Sie hier…. […]
EHDN 2024
…: PDF download Photos: View gallery Posters: Coming soon Abstracts published in a supplement edition of the Journal of Neurology Neurosurgery & Psychiatry: JNNP Meeting webpage: open Meeting Recordings: DAY… […]
Genetic Counseling and Testing WG
…predictive testing CAG-repeat size and transmission to the next generation Cultural diversity in genetic counselling practice Projects Previous Projects Predictive Test Recommendations Review Successful seed fund application for Genetic Counselling… […]