Dear Healthcare Professional,
We would like to ask you to participate in this expert-opinion survey designed by the Behavioral Phenotype Working Group (BPWG) of the European Huntington’s Disease Network (EHDN).
The purpose of this survey is to evaluate the level of consensus among healthcare professionals regarding behavioral and pharmacological treatment strategies for neuropsychiatric symptoms in individuals with advanced Huntington’s Disease (HD).
The survey comprises 15 sections:
- The first section collects basic demographic information.
- The following 14 sections each focus on a specific neuropsychiatric symptom commonly observed in advanced HD and include statements addressing its behavioral and pharmacological management.
All statements have been developed by members of the EHDN BPWG.
The estimated time to complete this questionnaire is 8 minutes. It is possible to pause the survey and continue completing it at a later time.
To thank you for your time and effort, the EHDN BPWG will acknowledge participants who complete this questionnaire in the paper arising from this study.
We sincerely appreciate your expertise and contribution to this research. We would appreciate if you could complete the survey before 01 June 2026.
If you are willing to participate, please click on the following link: https://www.surveymonkey.com/r/3XCZHRQ
or scan the following QR code:
With kind regards,
Mayke Oosterloo,
Lead facilitator of the EHDN Problem Behavioral Working Group