Information about EHDN endorsed ROCHE study

…(HSG) Research Advisory Committee were given the opportunity to review the study protocol of the eagerly awaited clinical trial by Roche titled ‘A Randomized, Multicenter, Double blind, Study to Evaluate… […]

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Cognitive Phenotype WG

reliable and sufficiently specific? How do structural and functional brain changes translate into the cognitive decline observed in HD? How do cognitive impairments impact functional independence? Can we measure functional… […]

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Extract2_07/2023_NL-Issue49

…understanding our community. To begin, we are looking at how people search for resources and support. This is an ethically approved, international survey open to anyone aged 18 or older… […]

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EHDN2022

Committee of the European Huntington’s Disease Network we want to thank you for your participation in the EHDN2022 Plenary Meeting. Meeting recordings: DAY1, DAY2, DAY3 Photos: Slide show Program Download:… […]

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Ethical and Legal Considerations

…ongoing three years after the Regulation has come into operation. Further information, including on the expected application date for the Regulation, is available from the European Medicines Agency: www.ema.europa.eu/en/human-regulatory/research-development/clinical-trials/clinical-trial-regulation…. […]

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Clinical Trial Sponsors

…quality. It is highly influential within the community and is used by potential participants and sites to guide them in decisions about whether or not to participate in a trial…. […]

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Clinical Trial Sponsors

…ethic quality. It is highly influential within the community and is used by potential participants and sites to guide them in decisions about whether or not to participate in a… […]

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test – table

…A New In Vivo and In Vitro Single-Cell Atlas of Developing Medium Spiny Neurons to Guide Future Improvements for Huntington Disease Cell-Replacement Therapies and Disease Modelling Vittoria Bocchi COMING SOON… […]

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fellowship programme

…healthcare professionals) working in HD clinical practice through the sharing of knowledge and experience. Fellows selected for the programme spend six weeks working in a highly regarded, multi-disciplinary HD clinic… […]

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