extract1_04/2023_NL-issue48
…directly beneficial to people. And as it happened, there was a new principal investigator in the department next door, and he had just started a laboratory looking at the role… […]
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Executive Committee
…Robi Blumenstein B.A., LL.B., MBA CV President CHDI Management, Inc. New York, USA email: robi.blumenstein@chdifoundation.org Dina de Sousa Representative of the EHA U.K. email: dina@eurohuntington.org Ex Officio of the Executive… […]
CHDI’s 18th Annual HD Therapeutics Conference – scientific presentations
…share ideas, learn about new disciplines, network with colleagues and build new collaborative partnerships. We are indebted to all of the conference speakers, and especially grateful to those who are… […]
Scientific and Bioethics Advisory Committee
…holmanspa@cardiff.ac.uk Heidi Bentzen Bioethics Advisor Oslo, Norway email: h.b.bentzen@medisin.uio.no Marie Short Patient Representative Scotland email: mariershort@gmail.com Former Committee members of the SBAC Kathrin Reetz, Ahmad Aziz, Kristina Becanovic, Leonor Correia… […]
Help HSG Help the HD Community Receive Better Care
…more easily find care in their own communities. The popular CME4HD program provided at HSG’s annual event is now available online, anytime, anywhere – for FREE. Find out more… […]
ERN-RND webinars
…ERN-RND provides free educational webinars on rare neurological and neuromuscular diseases – in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of… […]
MDS-ES and EHDN Joint Online Course Series
…The MDS-ES and EHDN Joint Online Course Series: Huntington’s Disease: From Foundational Principles to Assessment and Treatment is available for free on-demand access through the MDS Education Roadmap…. […]
Genetic Modifier WG
…MOA) Website: Genome-wide Association Analysis for Genetic Modifiers of Huntington’s Disease. J Huntingtons Dis. 2015 Sep 29;4(3):279-84. PMID: 26444025 Publications arising from additional work of the working group L Jones,… […]
extract6_07/2024_NL-Issue52
…Tübingen, Germany ‘I am confident that I can help the EHDN define and support research initiatives, as well as contribute to guidelines and recommendations on genetic testing questions in both… […]
Movement Disorder Research Grant by the Jacques and Gloria Gossweiler Foundation
…The Neurology Scientific Advisory Board of JGGF is presided by Prof. Dr. med. Jean-Marc Burgunder. The application for funding has to meet to the formal requirements mentioned on https://www.jggf.ch/en/neurology-research… […]