Roche GENERATION-HD2 study endorsed* by EHDN

…of study participants and sites: This phase II study aims to recruit participants from approximately 70 sites in Argentina, Australia, Austria, Canada, Denmark, France, Germany, Italy, New Zealand, Poland, Spain,… […]

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Personal Statement of Nayana Lahiri

…have a crucial role in working with local health systems and regulators, industry partners, patient groups to prepare for new treatments. I am honoured to be asked to stand for… […]

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Condolence Prof. Marina Frontali

…end she was passionately providing care and counseling for HD families. She was hopeful for the new HD therapies on the horizon. She will be missed in the HD community,… […]

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EHDN2022 DAY 1

…VIDEO Wild-type Huntingtin: Evolution, Structure, Function Elena Cattaneo Remembering Lesley Jones Anne Rosser and Sarah Tabrizi PLENARY SESSION I: New Genetics of HD; Chaired by Hoa Huu Phuc Nguyen and… […]

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EHDN Working Groups and Task Forces

…Formulating key scientific and EHDN strategic questions Identifying potential collaborators or funding opportunities for research Creating and supporting Task Forces to address specific scientific questions proposed by the Think Tank… […]

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Central Coordination

…Diseases Bonn, Germany email: patrick.weydt@uni-bonn.de Jamie Levey Chief Operating Officer New York, USA email: jamie@euro-hd.net Franziska Steck Project Manager Ulm, Germany email: franziska.steck@uniklinik-ulm.de Tim McLean Clinical Operation Manager Edinburgh, U.K…. […]

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