wgtest
…Force lead facilitators to help identify potential collaborators or funding opportunities for their research or if they want to discuss scientific ideas. Identification of key scientific questions in HD. The… […]
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Clinical Trial Sponsors
…EHDN Clinical Trial Services Under construction EHDN Clinical Trial Endorsement An EHDN endorsement is a statement to the HD community that a protocol is of high scientific and ethic… […]
extract5_05/2024_NL-Issue50
…professionals, scientists and families, who together, as a community, represent many different countries and perspectives. Exciting! What can you share now about the programme? Åsa: An important topic, and one… […]
Clinical Trial Sponsors
…questions for clarification and the EHDN EC endorsement decision. For global trials, assessment and recommendations may be provided jointly with other networks, including the Huntington Study Group or the Chinese… […]
Occupational Therapy WG
…of best practice Huntington’s disease through OT guidelines and/ or clinical tips. Projects Collecting case studies related to patients, care, interventions, methods, and equipment and mapping these against clinical tips… […]
Health Economics Task Force
…the capacity of the network to deliver intrathecal treatment, to take steps to improve this, to provide training and good practice guidelines. We aim to guide the process of HTA… […]
Amendments to the EHDN Constitution 2021
The comment period for the amendments to the EHDN Constitution is now open. […]
EHDN plenary meetings
…(EHA). The scientific programme includes recent advances in both basic and clinical HD research and attendees have the opportunity to meet experts in the field of HD studies in more… […]
AskBio AB-1001 (previously known as BV-101) study endorsed* by EHDN
…Manifest Huntington’s Disease. No. of study participants and sites: This open-label study aims to recruit participants from 2 sites in France. For further information see the clinical trial registration…. […]
EHDN statement on the discontinuation of the GENERATION HD1 trial
…drug on the clinical course of HD. Dosing is also being paused on the open label extension study, GEN-EXTEND. This decision is the outcome of a pre-planned review of the… […]