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EHDN PODCAST | Juvenile and Paediatric HD

Posted on kwiecień 17, 2024 by Lisanne Walter

Episode #1: Introduction: What is Juvenile and Pediatric HD? […]

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10th Congress of the European Academy of Neurology – Helsinki 2024 – June 29-July 2

Posted on kwiecień 2, 2024 by Lisanne Walter

[…]

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Gratitude Day 2024

Posted on marzec 13, 2024 by Lisanne Walter

March 23, 1993 is the date when the mutation that causes Huntington’s disease was first published. We launched Gratitude Day as a way of honoring the families who made this discovery possible. […]

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EHDN Newsletter – 51st edition

Posted on marzec 1, 2024 Edited marzec 1, 2024 by Lisanne Walter

The EHDN newsletter (archive) aims to communicate the network’s activities and other developments of interest in the field of Huntington’s disease to the lay community, healthcare professionals and scientists. It appears three times a year (March 1, July 1, Nov 1). To receive EHDN news going forward, please subscribe to the EHDN news at the […]

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29 February is Rare Disease Day

Posted on luty 28, 2024 by Lisanne Walter

[…]

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Call for Nominations 2024

Posted on luty 23, 2024 Edited luty 23, 2024 by Lisanne Walter

We are seeking nominations for the EHDN Executive Committee (EC). If you are interested in being part of the EC, or would like to nominate somebody, […]

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Roche-EHDN Virtual Meeting – 12Feb2024

Posted on luty 23, 2024 by Lisanne Walter

On February 12, 2024, the EHDN has hosted a virtual platform meeting on the Generation-HD1 trial to discuss the previously published data. The video of this meeting is available. […]

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TEDxBath: The Unlimited Capability of Every Human

Posted on luty 9, 2024 by Lisanne Walter

Charles Sabine’s talk represents his personal experience with and understanding of Huntington’s Disease. [available since Feb 8, 2024] […]

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EHDN virtual platform meeting: Tominersen – GenHD1 data and beyond

Posted on grudzień 22, 2023 Edited grudzień 22, 2023 by Lisanne Walter

On February 12, 2024, at 16:00 CET (15:00 GMT), EHDN will be hosting a virtual platform meeting to discuss the recently published data on the Generation-HD1 trial (read more). The conference will consist of a presentation by the sponsor, Roche, followed by a Q&A session and a discussion by a panel on open (and answered) […]

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EHDN/MDS (ES) FELLOWSHIP NOW OPEN FOR APPLICATIONS

Posted on grudzień 18, 2023 by Lisanne Walter

Are you a young/recently qualified clinician interested in learning more about HD? Click here for further details. […]

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