On March 23rd, 1993, scientists announced the discovery of the gene causing Huntington’s Disease (HD). […]
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EHDN Newsletter – 48th edition
The EHDN newsletter (archive) aims to communicate the network’s activities and other developments of interest in the field of Huntington’s disease to the lay community, healthcare professionals and scientists. It appears three times a year (March 1, July 1, Nov 1). To receive EHDN news going forward, please subscribe to the EHDN news at the […]
HDYO International Young Adults Congress
March 17-19, 2023 in Glasgow, Scotland […]
CHDI’s 18th Annual Huntington’s Disease Therapeutics Conference
… to be held April 24 through 27, 2023, in Dubrovnik, Croatia. The conference program will cover all aspects of HD drug development, including the latest advances in understanding HD pathophysiology, novel HD therapeutic approaches, current and emerging biomarkers, and updates on ongoing clinical trials. […]
28 February, 2023 IS RARE DISEASE DAY
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. […]
PTC Therapeutics PIVOT-HD study endorsed* by EHDN
Study aims and goal: The primary goal of this study is to evaluate the safety and pharmacodynamic effects of PTC518 and placebo in participants with HD. No. of study participants and sites: This phase IIa study aims to recruit participants from sites in Australia, France, Germany, Netherlands, the UK and the US. For further information […]
FELLOWSHIP NOW OPEN FOR APPLICATIONS
Fellowship Exchange Programme in Huntington’s Disease is now open for applications. Are you a young/recently qualified clinician interested in learning more about HD? […]
EHDN Newsletter – 47th edition
The EHDN newsletter (archive) aims to communicate the network’s activities and other developments of interest in the field of Huntington’s disease to the lay community, healthcare professionals and scientists. It appears three times a year (March 1, July 1, Nov 1). To receive EHDN news going forward, please subscribe to the EHDN news at the […]
Sage Therapeutics DIMENSION-HD study endorsed* by EHDN
Study aims and goal: The primary purpose of this study is to evaluate the effect of SAGE-718 on cognitive performance and functioning in participants with HD. No. of study participants and sites: This phase II study aims to recruit participants from approximately 50 sites in Australia, Europe and North America. For further information see the […]
Sage Therapeutics SURVEYOR-HD study endorsed* by EHDN
Study aims and goal: The primary purpose of this study is to assess the magnitude of the baseline difference between participants with early Huntington’s Disease (HD) and healthy participants (HP) with respect to measures of cognitive performance and the effect of SAGE-718 on cognitive performance and functioning in participants with HD. No. of study participants […]