Study aims and goal: Observational study funded by JPND (EU Joint Programme – Neurodegenerative Disease Research) assessing sleep, physical activity and nutrition in people with early-to-mid stage HD using digital technology e.g. wearable fitness trackers. No. of study participants and sites: approx. 300 participants for 12 months at 5 sites in Europe (UK, Germany, Spain, […]
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PROOF-HD study endorsed* by EHDN
Study aims and goal: An interventional, Phase III clinical trial to evaluate the efficacy and safety of pridopidine in patients with early stage manifest Huntington’s Disease (HD). No. of study participants and sites: The study aims to recruit 480 participants at sites in: Austria, Canada, Czech Republic, France, Germany, Italy, Netherlands, Poland, Spain, UK, USA […]
VIBRANT-HD study endorsed* by EHDN
Study aims and goal: A Randomized, double-blind, placebo-controlled dose range finding study with Open-Label Extension to evaluate the safety, tolerability, pharmacokinetics and pharmacodynamics of LMI070/branaplam in participants with early manifest HD. No. of study sites: This Phase IIb study aims to recruit stage 1 and 2 participants at sites in Belgium, Canada, France, Germany, Hungary, […]
Deep Brain Stimulation in HD
In December of this year, the last patient recruited into the European multi-centre deep brain stimulation study (HD-DBS) will reach the secondary endpoint (6 month follow-up). Recruitment was finished in 05/21. Perseverance pays off! The DBS team led by Professor Jan Vesper in Düsseldorf, Germany, expects data from the study to be available in 2022. […]
EHDN Working Group: Highlight
Keeping active during COVID-19: Keeping active is more difficult during COVID-19. The PHYSIOTHERAPY WORKING GROUP has brought together VIDEOS and BOOKLETS that can help you stay active at home. […]
EHDN Newsletter – 45th edition
The EHDN newsletter (archive) aims to communicate the network’s activities and other developments of interest in the field of Huntington’s disease to the lay community, healthcare professionals and scientists. It appears three times a year (March 1, July 1, Nov 1). To receive EHDN news going forward, please subscribe to the EHDN news at the […]
HDYO’s International Young Adults Virtual Congress: March 5-6, 2022
Supporting young people, all over the world, impacted by Huntington’s disease. This event is open to all HD community members: family and professional. […]
Presentation on
Roche’s Tominersen Programme — hosted by EHDN — January 20th, 2022 at 17h CET,
If you are a healthcare professional and/or a member of the scientific community you can watch the recording here. […]
The EU Joint Programme – Neurodegenerative Disease Research (JPND)
JPND-supported funded projects 2022 Pre-Call Announcement: Understanding the Mechanisms of Non-Pharmacological Interventions […]
Video «Hoping Machine» by Charles Sabine
We are delighted to share the Keynote session of the CHDI Therapeutics Conference 2021 where Charles Sabine meets former keynote speakers. This inspiring and important video is well worth watching! […]