Scientific and Bioethics Advisory Committee

Elected members of the SBAC


(from October 2018)

Ahmad Aziz
MD, PhD
(Chair)
CV

German Centre for Neurodegenerative Diseases (DZNE)
Bonn, Germany
email: ahmad.aziz@dzne.de


(from October 2022)

Sandrine Betuing

PhD
CV

Sorbonne University, Neuroscience Paris Seine, Institut de Biologie Paris Seine,
Paris, France
email: sandrine.betuing@upmc.fr


(from October 2022)

Marta Biagioli
PhD
CV

Department of Cellular, Computational and Integrative Biology (CIBio), University of Trento
Trento, Italy
email: marta.biagioli@unitn.it


(from October 2022)

Silvia Gines
PhD
CV

Universidad de Barcelona
Barcelona, España
email: silviagines@ub.edu


(from October 2022)

Davina J. Hensman Moss
PhD
CV

St George’s University of London
London, U.K.
email: dhensman@sgul.ac.uk


(from October 2022)

Jiří Klempíř
MD, PhD
CV

Dept. of Neurology and Center of Clinical Neuroscience, Charles University in Prague
Prague, Czech Republic
email: Jiri.Klempir@seznam.cz


(from October 2022)

Duncan James McLauchlan
BSc(Hons) MBChB MRCP(UK), PhD
CV

Cardiff University
Cardiff, U.K.
email: McLauchlanD@cardiff.ac.uk


(from October 2022)

Huu Phuc Nguyen
PhD
CV

Department of Human Genetics (W3)
Ruhr University Bochum

Bochum, Germany
email: Huu.Nguyen-r7w@ruhr-uni-bochum.de


(from October 2022)

Mayke Oosterloo
CV

University of Maastricht/ Maastricht University Medical Center+
Department of Neurology

Maastricht, Netherlands
email: mayke.oosterloo@mumc.nl


(from October 2022)

Willeke van Roon-Mom
CV

Department of Human Genetics, LUMC
Leiden, Netherlands
email: w.m.c.van_roon@lumc.nl


(from October 2022)

Niels Henning Skotte
PhD
CV



Copenhagen, Denmark
email: Niels.Skotte@cpr.ku.dk


(from October 2022)

Chiara Zuccato
PhD
CV

University of Milan
Milan, Italy
email: chiara.zuccato@unimi.it
Ex Officio of the Scientific and Bioethics Advisory Committee


Flav
Flaviano Giorgini

PhD, MA, BS


Implementation of EHDN’s Strategic Plan

University of Leicester, U.K.
email: fg36@le.ac.uk


Juliana1
Juliana Bronzova

MD, DSc


Implementation of EHDN’s Strategic Plan

Den Haag, The Netherlands
email: Juliana.Bronzova@euro-hd.net



Christine Capper-Loup
PhD

Enroll-HD Platform Biosamples / SPS Data Administration Director
Gümligen, Switzerland
email: christine.capper-loup@siloah.ch


Peter
Peter Holmans

BA, MSc, PhD
(Co-Opted)
CV

Cardiff University, Biostatistics & Bioinformatics Unit,
Dept of Psychological Medicine
Cardiff, U.K.
email: holmanspa@cardiff.ac.uk


heidi-bentzen
Heidi Bentzen

Bioethics Advisor
Oslo, Norway
email: h.b.bentzen@medisin.uio.no



Marie Short

Patient Representative
Scotland
email: mariershort@gmail.com
Former Committee members of the SBAC
Kathrin Reetz, Ahmad Aziz, Kristina Becanovic, Leonor Correia Guedes, Esther Cubo, Paola Bellosta, Jennifer Hoblyn, Katrin Lindenberg, Karine Merienne, Saul Martinez-Horta, Martha Nance, Daniel Zielonka
Elena Cattaneo, David Craufurd, Emilio Di Maria, Alexandra Dürr, Joaquim Ferreira, Lesley Jones, Christoph Kosinski, Berry Kremer, José Lucas, Ruth Luthi-Carter, Anne Rosser, Erich Wanker, Raphael Bonelli, Ralf Reilman, Ed Wild, Asa Petersen, Maria Björkqvist, Tiago Fleming Outeiro, *Stephen Dunnett, Chris Frost, Patrick Weydt, Flaviano Giorgini, Andrea Nemeth, Jennifer Thompson, Monica Busse, Erik van Duijn, Caterina Mariotti, Marta Valenza, Marina Frontali, Anne Nørremølle, Carsten Saft, Christine Verellen Dumoulin, *Pascal Borry
*co-opted members