…improve psychological well-being. Main goal To conduct, promote and share quality research that increases our understanding of Huntington’s disease from a psychological perspective and to develop and test interventions to… […]
…genetic counselling issues. The topics for sub-group projects link to recommendations for practice. This includes: Reproductive decision-making Pre-symptomatic testing Diagnostic testing Talking to children about HD Models of support post… […]
…with the exception of general information about HD, or predictive testing, the vast majority of respondents stated that they did not receive enough information on other important topics, for instance… […]
…(Health Technology Assessment), which includes analysis of existing data and steering the current round of research concerning burden of care/cost/QoL/function. We aim to develop a communication strategy to provide the… […]
…transgenic rat models for HD. We use them to understand cellular mechanisms of neuronal dysfunction and neurodegeneration, and to test therapeutic compounds. Further areas of research involve the search for… […]
…services for any business purpose, unless such Communication Service specifically allows such messages. Conduct or forward surveys, contests, pyramid schemes or chain letters. Download any file posted by another user… […]
…online certification (see below). Foster the development of novel more reliable and sensitive endpoints for clinical trials by exploring quantitative motor (e.g., “Q-Motor”*) assessments in biomarker studies and clinical trials… […]
…test new ideas. Providing information about ethical and legal considerations. Ensuring the continuous education of professionals working in HD clinical care and research through the fe llowship exchange programme. Offering… […]
…diagnostic and research contexts. With the genomics era on the horizon, I foresee a need for updated guidelines on diagnostics and novel genetic research directions and that these developments will… […]
…Committee of the European Huntington’s Disease Network we want to thank you for your participation in the EHDN2022 Plenary Meeting. Meeting recordings: DAY1, DAY2, DAY3 Photos: Slide show Program Download:… […]
