The EHDN newsletter (archive) aims to communicate the network’s activities and other developments of interest in the field of Huntington’s disease to the lay community, healthcare professionals and scientists. It appears three times a year (March 1, July 1, Nov 1). To receive EHDN news going forward, please subscribe to the EHDN news at the […]
Archiv rubriky: Uncategorized
HSG 2021: UNMASKING HD – The 28th Annual Meeting of the Huntington Study Group
HSG 2021: UNMASKING HD will take place November 4-6, 2021. Plenary, scientific, and research sessions will take place on Thursday and Friday. The annual Family Day Symposium will take place on Saturday. […]
MDS Virtual Congress 2021
September 17-22, 2021 […]
Novartis Global study endorsed* by EHDN
Study aims and goal: A Randomized, double-blind, placebo-controlled dose range finding study with Open-Label Extension to evaluate the safety, tolerability, pharmacokinetics and pharmacodynamics of LMI070/branaplam in participants with early manifest HD. No. of study sites: This Phase IIb study aims to recruit stage 1 and 2 participants at sites in Belgium, Canada, France, Germany, Hungary, […]
website survey
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Multidisciplinary Treatment and Care Working Group Meeting
10. September 2021 from 9.30-11.30 am CEST; Please feel welcome if you are proud of your multidisciplinary teamwork or in case you dream of improving multidisciplinary collaboration for HD families. […]
MDS-ES and EHDN Joint Online Course Series
MDS-ES and EHDN Joint Online Course Series: Huntington’s Disease: From Foundational Principles to Assessment and Treatment Date: Oct 08, 2021 – Oct 22, 2021 […]
EHDN Newsletter – 43rd edition
The EHDN newsletter (archive) aims to communicate the network’s activities and other developments of interest in the field of Huntington’s disease to the lay community, healthcare professionals and scientists. It appears three times a year (March 1, July 1, Nov 1). To receive EHDN news going forward, please subscribe to the EHDN news at the […]
Join us at the EHDN 2021 Remote Meeting
Dear Friend of EHDN, On behalf of the members of the Program and Organizing Committee and the Executive Committee of the European Huntington´s Disease Network it is our pleasure to cordially invite you to attend the 3 half-day EHDN Remote Meeting on Thursday – Saturday, September 9-11, 2021. […]
Project: Measuring the Daily Stressors of Young People Affected by Huntington’s Disease
This study is examining what parts of daily life are stressful for young people affected by HD. To understand this, we are asking young people from HD families to share their thoughts on the aspects of their life that are stressful or concerning, such as their family and social relationships, and daily functioning. […]