This study is examining what parts of daily life are stressful for young people affected by HD. To understand this, we are asking young people from HD families to share their thoughts on the aspects of their life that are stressful or concerning, such as their family and social relationships, and daily functioning. […]
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EHDN statement on the discontinuation of the phase 1b/2a trials PRECISION HD1 and PRECISION HD2
Wave Life Sciences announced on Monday 29th March 2021 that it will discontinue development of two of their three Huntingtin lowering ASO drugs as analysis of the phase 1b/2a trials PRECISION HD1 and PRECISION HD2 showed no evidence of a dose response across the dose levels tested. […]
16th Annual Huntington’s Disease Therapeutics Conference: A Forum for Drug Discovery & Development
CHDI is delighted to announce that the 16th Annual HD Therapeutics Conference will be a fully online, virtual experience to be held April 27-29, 2021. The conference program is currently being crafted and will cover all aspects of drug discovery and development for Huntington’s disease. […]
Huntington’s Australian National Conference 2021
Huntington’s NSW ACT is very pleased to announce it will be hosting the next national HD conference as a series of virtual events from 25 May – 1 June 2021. […]
EHDN statement on the discontinuation of the GENERATION HD1 trial
On Monday 22 March 2021 Roche announced that dosing is being permanently discontinued in the GENERATION HD1 phase III trial evaluating the effect of tominersen, an ASO-based huntingtin lowering drug on the clinical course of HD. Dosing is also being paused on the open label extension study, GEN-EXTEND. This decision is the outcome of a […]
Discontinuation of the GENERATION HD1 trial „Tominersen programme update – Community letter“
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Amendments to the EHDN Constitution 2021
The comment period for the amendments to the EHDN Constitution is now open. […]
HDYO’s International Young Adult Virtual Congress
Supporting young people, all over the world, impacted by Huntington’s disease. […]
In Memory of Prof. Marina Frontali
In memory of Prof. Marina Frontali, who sadly passed away due to COVID-19. […]
EHDN Newsletter – 42nd edition
The EHDN newsletter (archive) aims to communicate the network’s activities and other developments of interest in the field of Huntington’s disease to the lay community, healthcare professionals and scientists. It appears three times a year (March 1, July 1, Nov 1). To receive EHDN news going forward, please subscribe to the EHDN news at the […]