Behavioural Phenotype WG
…Aims Improve knowledge of behavioural symptoms of HD Review and develop measures to assess behavioural symptoms of HD Identify gaps in assessment of HD behavioural symptoms (eg perseveration) and… […]
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Alnylam Pharmaceuticals Global study endorsed* by EHDN
…protocols it finds to be of a high scientific and ethical quality. The endorsement decision is made on the basis of protocol review and discussion by the EHDN Executive Committee… […]
Sage Therapeutics DIMENSION-HD study endorsed* by EHDN
…endorsement: The EHDN endorses protocols it finds to be of a high scientific and ethical quality. The endorsement decision is made on the basis of protocol review and discussion by… […]
EHDN plenary meetings
…informal settings. All EHDN plenary sessions are open to clinicians, scientists, EHA delegates and members of families affected by HD. In intermedite years a remote meeting is being held, to… […]
Amendments to the EHDN Constitution 2021
The comment period for the amendments to the EHDN Constitution is now open. […]
EHDN2018 Plenary Meeting in Vienna – Join us!
…Registration and abstract submission for EHDN2018, taking place in Vienna from September 14-16, are now open. For all details and registering, click here… […]
Clinical Trial Update: Results from the Phase 2 DIMENSION Study
…the dalzanemdor programme will close, including the currently ongoing open-label extension study PURVIEW. While these are disappointing developments, we recognise and are grateful for the progress made by Sage in… […]
Clinical Trial Update: Results from the Phase 2 DIMENSION Study
…the dalzanemdor programme will close, including the currently ongoing open-label extension study PURVIEW. While these are disappointing developments, we recognise and are grateful for the progress made by Sage in… […]
Palliative Care for Huntington’s Disease patients
…disease, and their treatments on quality of life? An opportunity is currently open through an EU call to apply for a collaborative project to strengthen the evidence base for available… […]
EHDN virtual platform meeting: Tominersen – GenHD1 data and beyond
…The conference will consist of a presentation by the sponsor, Roche, followed by a Q&A session and a discussion by a panel on open (and answered) questions and the way… […]