EHDN statement on the discontinuation of the GENERATION HD1 trial
…drug on the clinical course of HD. Dosing is also being paused on the open label extension study, GEN-EXTEND. This decision is the outcome of a pre-planned review of the… […]
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Personal Statement of Thomas Massey
…My interest in Huntington’s disease comes from meeting and talking to HD families as a junior doctor. From that point I knew I wanted to use my research… […]
Systems Modelling WG
…predict the age-at-onset or progression of HD. We are aiming to make new algorithms available to the community — covering a large array of applications such as for example analysis/integration… […]
Personal Statement of Hoa Nguyen
…and research context. With the genomics era on the horizon, our gained knowledge on genetic modifiers and new genetic tools available, I foresee that updated guidelines on diagnostics and novel… […]
MDS-ES and EHDN Joint Online Course Series
…The MDS-ES and EHDN Joint Online Course Series: Huntington’s Disease: From Foundational Principles to Assessment and Treatment is available for free on-demand access through the MDS Education Roadmap. To… […]
About Us
…Foundation – www.chdifoundation.org For the rest, please read the imprint of the Universitätsklinikum Ulm. Pictures Shutterstock images are used under license from Shutterstock.com. EHDN would like to thank Shutterstock…. […]
Health Economics Task Force
…the capacity of the network to deliver intrathecal treatment, to take steps to improve this, to provide training and good practice guidelines. We aim to guide the process of HTA… […]
EHDN2022 – Post meeting page
…Disease Network we want to thank you for your participation in the EHDN2022 Plenary Meeting on Friday – Sunday, September 16-18, 2022 Program Download [PDF] Meeting-Report: Under Review Abstracts Published… […]
Novartis Global study endorsed* by EHDN
…participants at sites in Belgium, Canada, France, Germany, Hungary, Italy, Lithuania, Russia, Spain, UK and USA. For further information see the clinicaltrials.gov website: (link will be posted when available)… […]
Video Postcard – 18th Annual HD Therapeutics Conference Dubrovnik
…to discuss their latest progress, share ideas, and spark new collaborations. If you would like to post any of these Postcards on your website, please contact info@chdifoundation.org. Postcard from Dubrovnik… […]