…participant selection process. What can be done now? The best thing that patients, families and the wider HD community can do now is to keep informed about the latest developments…. […]
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EHDN Newsletter – 39th edition
…The EHDN newsletter (archive) aims to communicate the network’s activities and other developments of interest in the field of Huntington’s disease to the lay community, healthcare professionals and scientists…. […]
Advanced Therapies WG
…of the field, the production of recommendations, identification of specific research requirements, planning of specific research projects and identification of funding pathways. Develop effective common protocols for specific processes for… […]
Call of the European Reference Network for Rare Neurological Diseases (ERN-RND)
…by the EU to support patients and families affected by rare neurological diseases which requires much specialised knowledge, treatment and resources (http://www.ern-rnd.eu/). ERN-RND is currently focusing on the following diseases… […]
EHDN statement on the pausing of dosing in the endorsed clinical trials VIBRANT and AMT-130
/pausing-endorsed-clinical-trials/… […]
Prof. Lesley Jones – In Memoriam
…Lesley was a well-known figure in the HD community and had collaborators across the globe. She has been embedded in HD research for most of her career and was central… […]
EHDN well represented at EAN congress in Amsterdam
The 3rd Congress of the European Academy of Neurology (EAN) took place in Amsterdam, June 24-27, with a large attendance of more than 6000 delegates. This was the… […]