EHDN statement on the pausing of dosing in the endorsed clinical trials VIBRANT and AMT-130
/pausing-endorsed-clinical-trials/… […]
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EHDN well represented at EAN congress in Amsterdam
The 3rd Congress of the European Academy of Neurology (EAN) took place in Amsterdam, June 24-27, with a large attendance of more than 6000 delegates. This was the… […]
EHDN Newsletter – 39th edition
…The EHDN newsletter (archive) aims to communicate the network’s activities and other developments of interest in the field of Huntington’s disease to the lay community, healthcare professionals and scientists…. […]
Prof. Lesley Jones – In Memoriam
…Lesley was a well-known figure in the HD community and had collaborators across the globe. She has been embedded in HD research for most of her career and was central… […]
Personal Statement of Mayke Oosterloo
…Currently, I am involved in clinical and scientific research both nationally and internationally regarding HD. I believe I could make a contribution to the tasks of the Executive Committee (EC)… […]
2024 EHDN/MDS (ES) FELLOWSHIP
…given to applicants who are already engaged in clinical practice or research in HD and have a realistic prospect of remaining active in the HD field following completion of the… […]
AskBio AB-1001 (previously known as BV-101) study endorsed* by EHDN
…Manifest Huntington’s Disease. No. of study participants and sites: This open-label study aims to recruit participants from 2 sites in France. For further information see the clinical trial registration…. […]
Events
no event… […]
HDYO’s International Young Adults Virtual Congress: March 5-6, 2022
…Supporting young people, all over the world, impacted by Huntington’s disease. This event is open to all HD community members: family and professional…. […]
Palliative Care for Huntington’s Disease patients
…disease, and their treatments on quality of life? An opportunity is currently open through an EU call to apply for a collaborative project to strengthen the evidence base for available… […]