…MOA) Website: Genome-wide Association Analysis for Genetic Modifiers of Huntington’s Disease. J Huntingtons Dis. 2015 Sep 29;4(3):279-84. PMID: 26444025 Publications arising from additional work of the working group L Jones,… […]
…Clinical Trial Update: On 10th December, uniQure shared the exciting news about alignment with the US Food and Drug Administration (FDA) on a path forward for AMT-130 gene therapy… […]
The 3rd Congress of the European Academy of Neurology (EAN) took place in Amsterdam, June 24-27, with a large attendance of more than 6000 delegates. This was the… […]
/pausing-endorsed-clinical-trials/… […]
…Currently, I am involved in clinical and scientific research both nationally and internationally regarding HD. I believe I could make a contribution to the tasks of the Executive Committee (EC)… […]
…The Neurology Scientific Advisory Board of JGGF is presided by Prof. Dr. med. Jean-Marc Burgunder. The application for funding has to meet to the formal requirements mentioned on https://www.jggf.ch/en/neurology-research… […]
…The EHDN newsletter (archive) aims to communicate the network’s activities and other developments of interest in the field of Huntington’s disease to the lay community, healthcare professionals and scientists…. […]
…Tübingen, Germany ‘I am confident that I can help the EHDN define and support research initiatives, as well as contribute to guidelines and recommendations on genetic testing questions in both… […]
…Lesley was a well-known figure in the HD community and had collaborators across the globe. She has been embedded in HD research for most of her career and was central… […]
…of best practice Huntington’s disease through OT guidelines and/ or clinical tips. Projects Collecting case studies related to patients, care, interventions, methods, and equipment and mapping these against clinical tips… […]