Research & Publications
…carers of HD patients and 2) to validate these instruments as outcome measures. Juvenile HD. The aim of this study was to test the JHD phenotype adapted UHDRS® Motor and… […]
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Grant Management & Collaborations
…innovative and interdisciplinary basic research focused on the complex mechanisms of living organisms; topics range from molecular and cellular approaches to systems and cognitive neuroscience, and the interactions between organisms…. […]
HD Patients and Families
…Život s HCH Pozitivní testování zmnožení genu HCH ovlivňí nejen život dotyčného jedince, ale také životy jeho rodinných příslušníků. Potřeba podpory, léčby a klinické péče se liší v závislosti… […]
Multidisciplinary Treatment and Care WG
…for Huntington’s disease: who, what and why https://www.futuremedicine.com/doi/pdf/10.2217/nmt.11.85 Coordinated multidisciplinary care for ambulatory Huntington’s disease patients. Evaluation of 18 months of implementation https://ojrd.biomedcentral.com/articles/10.1186/1750-1172-6-77 Huntington’s Disease Outpatient Clinic for Functional Diagnosis… […]
EHDN2021 Remote Meeting Report
…safety profile’ whereas the same dose given once every 16 weeks while having a safety profile comparable to placebo, showed no apparent observable benefit. Schobel updated that simple univariate analyses… […]
About EHDN
Rozvoj Výzkumu EHDN věří, že podpora výzkumu k prohlubování znalosti je zásadní, protože usilujeme o vývoj účinné léčby HCH. Tato filosofie je uplatňována v řadě iniciativ, včetně otevřeného… […]
Physiotherapy WG
…of clinical guidelines Communicate and collaborate with the HD community to ensure that education and advice is freely available to all. Our goals are to: Support and enable the use… […]
EHDN Test WG
Aims … Projects … EHDN Webinar EHDN Paediatric HD (PHD) WG: webinar series Part 1: Introduction to the conference issues keypoints:… When: Monday 3th July 2023 –… […]
test – table
…COMMUNICATIONS I: Chaired by: Esther Cubo and Lauren Byrne Research Participation: The View of Persons at Risk and Persons with Premanifest HD Filipa Júlio Huntington’s Disease Burden of Illness (HDBOI):… […]
Health Economics Task Force
…of the working group Construct and test valid health economic models for use in trials Develop partnerships with companies and academic institutions to further this aim Identify measures for economic… […]