Research & Publications

…seeks to review and publish an update to the 2013 International Recommendations for Predictive Test Counselling in Huntington’s Disease. Basic Research Projects: Modifiers Enteric Nervous System in Huntington’s Disease (HD):… […]

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Grant Management & Collaborations

…Frontier Science Program Supports innovative and interdisciplinary basic research focused on the complex mechanisms of living organisms; topics range from molecular and cellular approaches to systems and cognitive neuroscience, and… […]

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HD Patients and Families

…Život s HCH Pozitivní testování zmnožení genu HCH ovlivňí nejen život dotyčného jedince, ale také životy jeho rodinných příslušníků. Potřeba podpory, léčby a klinické péče se liší v závislosti… […]

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Multidisciplinary Treatment and Care WG

…for Huntington’s disease: who, what and why https://www.futuremedicine.com/doi/pdf/10.2217/nmt.11.85 Coordinated multidisciplinary care for ambulatory Huntington’s disease patients. Evaluation of 18 months of implementation https://ojrd.biomedcentral.com/articles/10.1186/1750-1172-6-77 Huntington’s Disease Outpatient Clinic for Functional Diagnosis… […]

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Physiotherapy WG

…de Huntington que vivem em lares e casas de repouso PHD Como manter-se saudável e ativo quando se vive com PHD Ficha Informativa sobre o Treino do Equilíbrio e da… […]

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EHDN2021 Remote Meeting Report

…safety profile’ whereas the same dose given once every 16 weeks while having a safety profile comparable to placebo, showed no apparent observable benefit. Schobel updated that simple univariate analyses… […]

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About EHDN

Rozvoj Výzkumu EHDN věří, že podpora výzkumu k prohlubování znalosti je zásadní, protože usilujeme o vývoj účinné léčby HCH. Tato filosofie je uplatňována v řadě iniciativ, včetně otevřeného… […]

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test LW

…meeting and we’ll share lots of more photos – watch this space. It was amazing to see you there 😍#HDCommunity #HuntingtonsDisease pic.twitter.com/F9lKhs20p2 — EHDN News (@EHDN_News) September 20, 2024… […]

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test – table

COMMUNICATIONS I: Chaired by: Esther Cubo and Lauren Byrne Research Participation: The View of Persons at Risk and Persons with Premanifest HD Filipa Júlio Huntington’s Disease Burden of Illness (HDBOI):… […]

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Health Economics Working Group

…of the working group Construct and test valid health economic models for use in trials Develop partnerships with companies and academic institutions to further this aim Identify measures for economic… […]

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