…seeks to review and publish an update to the 2013 International Recommendations for Predictive Test Counselling in Huntington’s Disease. Basic Research Projects: Modifiers Enteric Nervous System in Huntington’s Disease (HD):… […]
…Frontier Science Program Supports innovative and interdisciplinary basic research focused on the complex mechanisms of living organisms; topics range from molecular and cellular approaches to systems and cognitive neuroscience, and… […]
…an klinischen Studien zur HK teil. Entsprechend lokalen Überweisungssverfahren können sie für die medizinische Beratung zur genetischen Testung und klinischen Versorgung und Behandlung kontaktiert werden. Das EHDN arbeitet eng mit… […]
…for Huntington’s disease: who, what and why https://www.futuremedicine.com/doi/pdf/10.2217/nmt.11.85 Coordinated multidisciplinary care for ambulatory Huntington’s disease patients. Evaluation of 18 months of implementation https://ojrd.biomedcentral.com/articles/10.1186/1750-1172-6-77 Huntington’s Disease Outpatient Clinic for Functional Diagnosis… […]
…de Huntington que vivem em lares e casas de repouso PHD Como manter-se saudável e ativo quando se vive com PHD Ficha Informativa sobre o Treino do Equilíbrio e da… […]
…safety profile’ whereas the same dose given once every 16 weeks while having a safety profile comparable to placebo, showed no apparent observable benefit. Schobel updated that simple univariate analyses… […]
Forschung vorantreiben Das EHDN ist überzeugt, dass es für die Bemühungen, effektive Therapien für die HK zuentwickeln, notwendig ist, die Forschung zu unterstützen. Diese Philosophie wird in zahlreichen… […]
…meeting and we’ll share lots of more photos – watch this space. It was amazing to see you there 😍#HDCommunity #HuntingtonsDisease pic.twitter.com/F9lKhs20p2 — EHDN News (@EHDN_News) September 20, 2024… […]
…COMMUNICATIONS I: Chaired by: Esther Cubo and Lauren Byrne Research Participation: The View of Persons at Risk and Persons with Premanifest HD Filipa Júlio Huntington’s Disease Burden of Illness (HDBOI):… […]
…of the working group Construct and test valid health economic models for use in trials Develop partnerships with companies and academic institutions to further this aim Identify measures for economic… […]
