Research & Publications
…Germany, Poland, UK Completed *OLE: open label extension Projects supported by EHDN The EHDN supports basic and clinical research in HD by offering seed funds, making available the clinical data… […]
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Physiotherapy WG
…Physiotherapy Clinical Guidelines, a systematic review on physical therapy and exercise interventions published in 2017 and the clinical recommendations to guide physical therapy practice published in 2020. The 2013 guidelines… […]
EHDN2021 Remote Meeting Report
…Science Writer, Catherine Deeprose, was introduced and it was noted that the Communications Group is working on a new communication policy as well as conducting surveys with EHDN website users… […]
Grant Management & Collaborations
…comments, questions or queries. Individual Grants Are you looking for opportunities to develop your expertise and career in HD? The following are examples of potential opportunities. Show Career Grants Grant… […]
Multidisciplinary Treatment and Care WG
…at risk throughout treatment and care from early to advanced disease stages. Assessing research on facilitators and barriers in organising best practice networks. Investigating care delivery and ways for improvement… […]
Psychological Interventions and Approaches WG
…to download from here. A fuller version is also available here. The study highlighted the lack of research conducted to date and hence the difficulty in making clear recommendations. Ongoing… […]
EHDN Structure
…of Neurology London, U.K. email: E.Wild@ucl.ac.uk Appointed Members of the Executive Committee Robi Blumenstein B.A., LL.B., MBA CV President CHDI Management, Inc. New York, USA email: robi.blumenstein@chdifoundation.org Dina de Sousa… […]
EHDN-endorsed Trials and Studies
…posted on the EHDN website and shared on social media, signalling the same message to the HD community. The studies reported below are of investigational compounds, where safety and efficacy… […]
HD Patients and Families
Å leve med HS Å teste positivt for det forlengede HS-genet påvirker ikke bare livet til individet det gjelder, men også livene til hans eller hennes familiemedlemmer. Behovet… […]
About EHDN
Fremmer forskning Da EHDN streber etter å utvikle effektive behandlinger for HS, tror vi på at det er essensielt å legge til rette for forskning for å fremme… […]