Research & Publications
…Germany, Poland, UK Completed *OLE: open label extension Projects supported by EHDN The EHDN supports basic and clinical research in HD by offering seed funds, making available the clinical data… […]
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Physiotherapy WG
…Physiotherapy Clinical Guidelines, a systematic review on physical therapy and exercise interventions published in 2017 and the clinical recommendations to guide physical therapy practice published in 2020. The 2013 guidelines… […]
EHDN2021 Remote Meeting Report
…Science Writer, Catherine Deeprose, was introduced and it was noted that the Communications Group is working on a new communication policy as well as conducting surveys with EHDN website users… […]
Grant Management & Collaborations
…comments, questions or queries. Individual Grants Are you looking for opportunities to develop your expertise and career in HD? The following are examples of potential opportunities. Show Career Grants Grant… […]
Multidisciplinary Treatment and Care WG
…at risk throughout treatment and care from early to advanced disease stages. Assessing research on facilitators and barriers in organising best practice networks. Investigating care delivery and ways for improvement… […]
Psychological Interventions and Approaches WG
…to download from here. A fuller version is also available here. The study highlighted the lack of research conducted to date and hence the difficulty in making clear recommendations. Ongoing… […]
EHDN Structure
…of Neurology London, U.K. email: E.Wild@ucl.ac.uk Appointed Members of the Executive Committee Robi Blumenstein B.A., LL.B., MBA CV President CHDI Management, Inc. New York, USA email: robi.blumenstein@chdifoundation.org Dina de Sousa… […]
EHDN-endorsed Trials and Studies
…posted on the EHDN website and shared on social media, signalling the same message to the HD community. The studies reported below are of investigational compounds, where safety and efficacy… […]
HD Patients and Families
…activités au sein du pays concerné. De plus, les groupes de travail d’EHDN ont développé des guidelines concernant les meilleures pratiques de prise en charge clinique pour la MH, disponibles… […]
About EHDN
…philosophie s’applique dans de nombreuses initiatives, comprenant le libre partage des données, les infrastructures et le soutien, les opportunités de financement, l’enseignement et la formation. Deux larges études observationnelles internationales,… […]