Study aims and goal: Phase IIb, randomized, double-blind, placebo-controlled study in parallel groups assessing the efficacy and safety of two doses of SOM3355 in patients suffering from Huntington’s Disease with choreic movements. No. of study participants and sites: This Phase IIb study aims to recruit participants from 22 sites in France, Germany, Italy, Poland, Spain, […]
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Latest News
Joint working Genetic Modifiers Working Group, Genetic Counseling & Testing Working Group and Incidental Findings Task Force meeting
Meeting notice: Joint working Genetic Modifiers Working Group, Genetic Counseling & Testing Working Group and Incidental Findings Task Force meeting Thursday 15th September 2022, 13.00 – 17.00 Location: room Magenta B, Bologna Congressi S.r.l (if you would like information about joining remotely please let us know) Application of genetic modifier of Huntington’s disease data in […]
EHDN statement on the pausing of dosing in the endorsed clinical trials VIBRANT and AMT-130
/pausing-endorsed-clinical-trials/ […]
Prof. Lesley Jones – In Memoriam
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17th Annual HD Therapeutics Conference – Postcard from Palm Springs
The Postcard from Palm Springs video from the 17th Annual HD Therapeutics Conference held February 28 through March 3, 2022, in Palm Springs, California is now available to view online. […]
EHDN Newsletter – 46th edition
The EHDN newsletter (archive) aims to communicate the network’s activities and other developments of interest in the field of Huntington’s disease to the lay community, healthcare professionals and scientists. It appears three times a year (March 1, July 1, Nov 1). To receive EHDN news going forward, please subscribe to the EHDN news at the […]
MDS-ES and EHDN Joint Online Course Series
The MDS-ES and EHDN Joint Online Course Series: Huntington’s Disease: From Foundational Principles to Assessment and Treatment is available for free on-demand access through the MDS Education Roadmap. […]
Photo Exhibition at the EHDN Plenary Meeting
Participate in the Photo Exhibition at the EHDN Plenary Meeting! – In collaboration with the EHA, there will be a photo exhibition organized at the EHDN2022 Plenary Meeting in September […]
European Huntington Association (EHA) – online survey
‚On behalf of the EHA, please complete the survey to collect information on access to care for HD families.‘ […]
HD Human Biology Project
The Huntington’s Disease Society of America has adopted a patient-centric research strategy to push the field closer to meeting our goal of identifying effective therapies. The HD Human Biology Project is the cornerstone of this strategy. … […]