• To identify the deficits in HD that are associated with impaired fitness to drive and to predict such impairments.
  • To identify the tests that best quantify these deficits.
  • To come up with recommendations to help physicians to decide when they should refer HD patients to national driving license agencies.
  • To come up with recommendations that can be used by national driving license agencies to improve fitness to drive assessments in HD.

The Taskforce is a joint effort between:

  • Leiden University Medical Centre, The Netherlands
  • University Medical Center Groningen, The Netherlands
  • George Huntington Institute Münster, Germany
  • University Hospital Leuven, Belgium
  • Ulm University, Germany


  • Leiden University Medical Centre: Differences in driving ability between premanifest HD, manifest HD, and healthy individuals. Which cognitive, motor or psychiatric symptoms contribute to driving ability in HD?
  • University Medical Center Groningen: The effect of risk taking behaviour and self-awareness in HD patients on fitness to drive.
  • George Huntington Institute Münster: Integrate all results and combine this with the ENROLL-HD data. Can we predict fitness to drive from data collected in ENROLL-HD?
  • All sites: A questionnaire survey among patients and spouses on driving behaviour.



University Medical Center Groningen
Groningen, the Netherlands

George Huntington Institute Münster
Münster, Germany

University Hospital Leuven
Leuven, Belgium

Neurozentrum Siloah
Bern, Switzerland

Associated EHDN Language Area Coordinator:
Gulten Geneci, EHDN Lanco,