Aims

Every Huntington disease patient has the right to receive comparable, high-quality occupational therapy.

Occupational therapists are experts in assessing, analyzing and coaching the best possible balance in meaningful activities of daily living in areas which could include: work, domestic skills, driving, leisure or sleep.

The group’s intention is to provide quality occupational therapy (OT) by developing a consensus of best practice Huntington’s disease through OT guidelines and/ or clinical tips.

Projects

  1. Collecting case studies related to patients, care, interventions, methods, and equipment and mapping these against clinical tips
  2. Updating clinical tips
  3. Developing occupational therapy standards

Contact information

Lead facilitators:
Alex Fisher

Manon van Kampen

Marieke Clemens

Kirsty Page

Associated EHDN Language Area Coordinator:
Madalena Esteves
EHDN Lanco, Portugal and Spain