Aims
Every Huntington disease patient has the right to receive comparable, high-quality occupational therapy.
Occupational therapists are experts in assessing, analyzing and coaching the best possible balance in meaningful activities of daily living in areas which could include: work, domestic skills, driving, leisure or sleep.
The group’s intention is to provide quality occupational therapy (OT) by developing a consensus of best practice Huntington’s disease through OT guidelines and/ or clinical tips.
Projects
- Collecting case studies related to patients, care, interventions, methods, and equipment and mapping these against clinical tips
- Updating clinical tips
- Developing occupational therapy standards
Guides for Occupational Therapists
- Occupational Therapy for people with Huntington’s disease – Best Practice Guidelines
Download the guide
- Occupational Therapy Clinical Tips for Huntington’s disease – Seating and Posture
Download the guide
- Occupational Therapy Clinical Tips for Huntington’s disease – Self-care
Download the guide
- Occupational Therapy Clinical Tips for Huntington’s disease – Community
Download the guide
- Occupational Therapy Clinical Tips for Huntington’s disease – Domestic Skills
Download the guide
- Occupational Therapy Clinical Tips for Huntington’s disease – Eating and Drinking
Download the guide
- Occupational Therapy Clinical Tips for Huntington’s disease – End stage and Palliative care
Download the guide
- Occupational Therapy Clinical tips for Huntington’s disease – Sleep routine and Management
Download the guide
- Occupational Therapy clinical tips for Huntington’s disease – Social and Leisure
Download the guide
- Occupational Therapy Clinical Tips for Huntington’s disease – Work
Download the guide
Contact information
Lead facilitators:
Associated EHDN Language Area Coordinator:
EHDN Lanco, Portugal and Spain
last update 18 December 2025