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EHDN Newsletter – 52nd edition

Veröffentlicht am Juli 1, 2024Bearbeitet: Juli 1, 2024 von Lisanne Muetze

The EHDN newsletter (archive) aims to communicate the network’s activities and other developments of interest in the field of Huntington’s disease to the lay community, healthcare professionals and scientists. It appears three times a year (March 1, July 1, Nov 1). To receive EHDN news going forward, please subscribe to the EHDN news at the […]

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Clinical trial update: PTC Therapeutics reported initial 12-month data from the PIVOT-HD trial

Veröffentlicht am Juni 24, 2024Bearbeitet: Juni 24, 2024 von Lisanne Muetze

On 20 June 2024, PTC Therapeutics reported initial 12-month data from the PIVOT-HD trial, showing dose-dependent mHTT lowering in the blood and cerebrospinal fluid, and early evidence for potential clinical benefits. For more information, click here. […]

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Clinical trial update: Sage Therapeutics reported topline data on the Phase 2 SURVEYOR study

Veröffentlicht am Juni 24, 2024 von Lisanne Muetze

On 11 June 2024, Sage Therapeutics reported topline data on the Phase 2 SURVEYOR study confirming that the primary endpoint was met and no new safety concerns emerged. Read the full press release. […]

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Video Postcard – 19th Annual HD Therapeutics Conference from Palm Springs

Veröffentlicht am Mai 21, 2024 von Lisanne Muetze

The Postcard from Palm Springs video from the 19th Annual HD Therapeutics Conference held February 26 – 29, 2024, in Palm Springs, California, is now available to view online. […]

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EHDN PODCAST | Juvenile and Paediatric HD

Veröffentlicht am April 17, 2024 von Lisanne Muetze

Episode #1: Introduction: What is Juvenile and Pediatric HD? […]

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10th Congress of the European Academy of Neurology – Helsinki 2024 – June 29-July 2

Veröffentlicht am April 2, 2024 von Lisanne Muetze

[…]

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Gratitude Day 2024

Veröffentlicht am März 13, 2024 von Lisanne Muetze

March 23, 1993 is the date when the mutation that causes Huntington’s disease was first published. We launched Gratitude Day as a way of honoring the families who made this discovery possible. […]

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EHDN Newsletter – 51st edition

Veröffentlicht am März 1, 2024Bearbeitet: März 1, 2024 von Lisanne Muetze

The EHDN newsletter (archive) aims to communicate the network’s activities and other developments of interest in the field of Huntington’s disease to the lay community, healthcare professionals and scientists. It appears three times a year (March 1, July 1, Nov 1). To receive EHDN news going forward, please subscribe to the EHDN news at the […]

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29 February is Rare Disease Day

Veröffentlicht am Februar 28, 2024 von Lisanne Muetze

[…]

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Call for Nominations 2024

Veröffentlicht am Februar 23, 2024Bearbeitet: Februar 23, 2024 von Lisanne Muetze

We are seeking nominations for the EHDN Executive Committee (EC). If you are interested in being part of the EC, or would like to nominate somebody, […]

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