We are seeking nominations for the EHDN Executive Committee (EC). If you are interested in being part of the EC, or would like to nominate somebody, […]
Important Dates
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Latest News
Roche-EHDN Virtual Meeting – 12Feb2024
On February 12, 2024, the EHDN has hosted a virtual platform meeting on the Generation-HD1 trial to discuss the previously published data. The video of this meeting is available. […]
TEDxBath: The Unlimited Capability of Every Human
Charles Sabine’s talk represents his personal experience with and understanding of Huntington’s Disease. [available since Feb 8, 2024] […]
EHDN virtual platform meeting: Tominersen – GenHD1 data and beyond
On February 12, 2024, at 16:00 CET (15:00 GMT), EHDN will be hosting a virtual platform meeting to discuss the recently published data on the Generation-HD1 trial (read more). The conference will consist of a presentation by the sponsor, Roche, followed by a Q&A session and a discussion by a panel on open (and answered) […]
EHDN/MDS (ES) FELLOWSHIP NOW OPEN FOR APPLICATIONS
Are you a young/recently qualified clinician interested in learning more about HD? Click here for further details. […]
Announcement: GENERATION HD1 study results published
GENERATION HD1 – This Phase 3 trial was stopped in March 2021 following a benefit–risk assessment by an independent data monitoring committee. A letter published 07/12/2023 in the New England Journal of Medicine (DOI: 10.1056/NEJMc2300400) details ad hoc analyses conducted on the week 69 data. Findings suggest that younger participants with lower disease burden may […]
Fellowship Exchange Programme in Huntington’s Disease – Pre-information
The 2024 call for applications will be launched very shortly. Are you a young/recently qualified clinician interested in learning more about HD? Click here for further details. […]
EHDN Newsletter – 50th edition
The EHDN newsletter (archive) aims to communicate the network’s activities and other developments of interest in the field of Huntington’s disease to the lay community, healthcare professionals and scientists. It appears three times a year (March 1, July 1, Nov 1). To receive EHDN news going forward, please subscribe to the EHDN news at the […]
EHDN Plenary Meeting and Enroll-HD Congress Strasbourg 2024 – Save the Date!
Dear Friends of EHDN, It is our pleasure to cordially invite you to the EHDN Plenary Meeting and Enroll-HD Congress Thursday 12th to Saturday 14th September, 2024 Strasbourg, France The EHDN and Enroll-HD 2024 is a collaborative event combining the EHDN Plenary Meeting and the Enroll-HD Congress. The event will be held across […]
Sign up for the Prilenia–EHDN Meeting!
EHDN will be hosting a virtual meeting to consider the emerging result of the Proof-HD study on Monday October 9th at 5pm CET (4pm GMT). The meeting is aimed at professionals, but all are welcome. […]